first of all, i need your help to like this page DONATION FOR ADRA AFIEYA
she's a 6 months baby who suffers a disease called biliary atresia.
cost of liver transplant over adra is 150,000 sgd (singapore dollar) and the operation is scheduled at a hospital at singapore.
kalau convert sgd 150k to myr, almost rm390k. banyak kan. tu tak termasuk other treatment and cost of medication etc.
below, i copy the description from that page.
Three days after birth, baby Adra had the jaundice and was treated at KPJ Damansara for a few months but her jaundice wasn’t 100% gone. Baby Adra's a happy baby, smiling and laughing not showing any signs that she’s not in good health. However, her momma noticed that baby Adra’s tummy was getting bigger and slightly grew bigger each day, and went to KPJ and KPJ had to refer to Pusat Perubatan University Malaya.
Baby Adra was only suspected to have Biliary Atresia and had to undergo an operation after biopsy last week, where the doctors had took a small piece of her liver resulted to the fact that she really had Biliary Atresia and the only effective treatments are either Kasai operation or liver transplantation.
The Kasai treatment had been done on baby Adra but the treatment can only be done to infants that are less than 150 days old (approximately 3 months old) and baby Adra’s 5+months old that caused her liver: damaged. Therefore, the percentage for Adra to fully recover is yet to be known.
Once your liver’s damaged there’s no cure for it and the reason why the Kasai treatment was done on baby Adra is not to heal it but to ensure that she can fight and live longer before she undergoes the liver transplant.
The doctor had advised the parents to start preparing the fees as the operation will be done at Singapore, costing roughly around Sin$150-180K (operational fees ONLY). You may be wondering, “Why must the surgery needs to be outside of Malaysia? Hospital Selayang charges only RM500”. Yes, trust us, no sane person would wanna go over the edge of what they have. The liver transplant in most of the (or all) hospitals in Malaysia are only for adults and the waiting list is too long. Please remember, Adra Afieya is just a baby who is turning 6 months old.
We’re seeking for donations for those who would wanna help us out with open hearts, regardless whether it is in the form of doas/prayers, money-wise or whatsoever and if you can’t do anything at all even with simple prayer, please click the “Home” button somewhere in the corner right of your Facebook homepage on your screen as we don’t feel that any form of hatred posts will help baby Adra in any way.
We’ll attach all relevant documents as soon as we get them as a form of evidence but as for now, we’re just seeking for the best help that we could get. May Allah bless each and everyone of you as much as your kind words in your doas and gestures had blessed baby Adra in giving her more possibility of chances to live.
now, hampir adra dah keluar dari hospital last tuesday dan setiap bulan akan ke hospital utk follow up.
i harap readers boleh like page adra, so semua information yg lebih tepat boleh tau.
ada 1 kisah menarik yg seorang hamba Allah ni share, puan anita. anak puan anita pun ada penyakit yg sama dgn adra.
anak puan anita, amier yg ada penyakit sama macam adra.
pengalaman and story daripada puan anita :
Dejavu ... lepas 12 tahun benda yg sama masih berlaku, minggu ni blur, tension, memang confius. Ingatkan takde lagi kes yg tak dpt dikesan rupa-rupanya ada lagi ...
Kami tak pernah bercerita pasal ni ... hanya sedara mara & kwn rapat je tau ... kami memang low profile, tapi apa yg berlaku last week, buatkan kami kena bukak blk pasal ni.
Mungkin ramai yg tak tau our son Ash Amier Andyka pengidap "Biliary Atresia", dilahirkan tanpa salur hempedu yg akhirnya merosakkan hati. Prosedur pertama pembedahan "kasai" dilakukan untuk repair, salur yg takde tu diganti dgn usus ... pembedahan lebih bagus kalau dilakukan sebelum baby berusia 60 hari, Amier buat masa umur 57 hari ... untuk Amier operation ni gagal. Langkah terakhir adalah pembedahan pemindahan hati .... bermula la hidup kami yg huru hara ...
Kos pada tahun 2003, Rm245 000.00, belum termasuk ubat anti penolakan Rm3000.00 sebulan, lebih dari gaji kami suami isteri ... pd masa tu la ...ubat tu pulak kena ambik seumur hidup ... fuh! cuba kirakan kos ubat utk seumur hidup.
Kenapa kami tak buat di hospital kerajaan misalnya Hospital Selayang walaupun hospital ni adalah hub hepar di Malaysia? Pjg ceritanya, menurut dr. list terlalu pjg, kena ikut turn, tak tau sepjg mana list tu sebab kami tak dibenarkan tgk pun ... hospital selayang pun import dr dari Australia ... Akhirnya kami buat di SJMC (sekrg SDMC) sebab ada pakar transplant dr Malaysia tapi base kat Singapore Dato' Dr. KC Tan. Masa tu sebulan 2 kali dia turun Malaysia. Tapi sekrg kami pelik, Dato' takleh masuk SJMC lagi, sebelum ni kami buat check up dgn Dato' di Seremban & terbaru di 'I Heal Mid Valley'. Kesian kami & Dato' kena tendang merata semuanya sebab 'prosedur' kerajaan ...
Berblk cerita pasal transplant tadi, nasibla kami kenal ramai kwn2 media antaranya, Hasnita Shaari masa tu reporter NST,Norliza Mohd Zain TV3, kak Normala Hamzah Utusan Malaysia & ramai lg. Kwn2, sedara mara & rakyat Malaysia memang best, duit operation dpt jugak cuma duit ubat kena fikir cara lain. Pemindahan hati Amier dilakukan pada 12/12/03 selama 12 jam dgn saya sebagai donornya. Alhamdulillah, dgn izin Allah. Selepas tu 2 tahun kami di hospital & sampai sekrg Amier masih jumpa @Dato' Dr. KC Tan ... untuk check up.
Lepas transplant, kisah Amier dgn hospital memang pjg, selps tu kami terpaksa ke Singapore pulak bila Amier start muntah & berak darah ... berapa kali keluar masuk ICU ... sampai skrg dah 6 kali operate. Lepas ni ada lg 'benda' nak kena 'repair' .... Takpela itu dah tersurat untuk Amier & kami sekeluarga ...
Tapi ini bukan cerita dejavu tu, sebenarnya saya terkilan sebab baby Adra Donation for ADRA AFIEYA pun mengidap sakit yg sama.... tapi penyakitnya tak dpt dikesan, dah umur 5 bulan baru tau. Baru 2 minggu lepas Adra buat 'kasai'. Allahuakbar ... hati Adra dah mula mengeras & sudah bertukar hitam ... kita doakan yg terbaik buat Adra. Yg tak dpt diterima berkali2 keluar masuk hospital tapi dr. duk cakap kena virus la, prolong jaundis la, hepatitis la ... benda yg sama dr. cakap masa time Amier dulu ... Itu mungkin 12 tahun lepas, tak ramai dr. yg tau pasal ni, tapi sekrg ni dah tahun 2014 pun berlaku benda yg sama ... alahai ...
Utk mak2 kat luar sana kalau baby jaundis, cuba tengok najis baby kalau colour pale ... bukan prolong jaundis... kemungkinan besar 'biliary atresia' ... bagitau dr.... yg tak tahan tu ramai dr. yg tak atau pasal 'billiary atresia' ni ... event prediatrician pun. Jaundis sebab 'billiary atresia' tak boleh dirawat dengan phototherapy ke, jemur ke, ubat sinseh ke, susu kambing, bomoh ke ... semua tu tak boleh ... hanya dengan pembedahan 'kasai' je, itupun dgn izin Allah ...
Untuk kwn2 fb bantulah Adra, percayalah kos utk merawat Adra lebih byk dr Amier ... sekrg semua dah naik termasuklah kos perubatan ... Insyaallah dgn kuasa Allah Adra dpt diselamatkan ... untuk faiz & liz perjuangan baru bermula ... bersedialah dengan semua kemungkinan. Kak Nita & Abg Sham pernah berada di situasi sama dan masih berjuang utk 'HERO" kami ... Ash Amier Andyka ... insyaallah ...
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so, i hope that the readers can help adra, donate as much as we can. even a little amount can be so much appreciated. selain tu, readers please really need your help to spread this news tak kira kat fb ke, instagram ke, twitter ke, blog and so on. now, the date of the transplant is still not scheduled yet. we have time to collect the fund as much as we can.
both 2 pictures above were after the operation of taken the sample of adra's liver. see how much she survives to live and able to smile. and the result, doctor told that she needs to do the transplant.
[Donations in monetary form can be done through this Maybank account:
5622 2732 7760 (ADZRIEFAIZ ADZLAN)]
bagi pihak adra and family, all the prayers and donation adalah sangat dihargai dan terima kasih banyak2. seumur hidup adra, she will never pay your kindness.
thank you :)
pictures courtesy -> https://www.facebook.com/AdraAfieya
p/s: thanks so much to puan anita sebab share pasal adra di fb beliau. juga sebab ajak org lain utk tolong adra. Allah je yg mampu balas :)
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